To this day, Melanie de Hilster-Doldersum (31) regrets that she did not stand up more. The woman from Hengelo sensed that something was wrong with her children, but was sent away again and again with the message that there was nothing wrong with them. It was only 2.5 years later that it became clear that they both had a progressive muscle disease.
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Melanie and Mike may lose their two children to a serious muscular disease, but remain hopeful
