Kidneys of Tess (1) only work for 5 percent, but it is the straw for parents: ‘She is always cheerful’ | Family

“What’s the deal with kidney disease?” For young parents Marije (29) and Ingmar (32) Malestein from Bunschoten, this apparently innocent question from a doctor is the start of a roller coaster that has still not stopped. They both turn out to be carriers of a gene that causes a very rare kidney disease in their now one-year-old daughter Tess. “What kind of future can we expect?”


Piet van Dijk

07-09-22, 07:00



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