Nurse Jenni tells about her life as a caregiver for her 10-year-old Kasper son in the 24h series.
The 24h series has been featured this week on TV1 every day. Saku Tiainen, Yle
The nurse of her working days Jenni41, spending in Espoo with patients in palliative care. At home, Jenni is waiting for a different kind of nursing. Jenni is also 10 years old Punch-Son of the carer.
Kasper is multi -patient and multi -disabled and has dozens of diagnoses. Some of them have been noticed when Kasper is a baby. With age, more diagnoses have become more.
“Life is different than you once thought about what family life with children could have at its best,” says Jenni on Saturday Alive 24h in the documentary episode.
– Perhaps the top is sad about how life has gone. It has been a process of to accept for years, Jenni continues.
Today, Jenni can think more positively. Jenni describes Kasper as a joyful and laughing child who loves everything and everyone.
Alive 24h The documentary series shows how a mother feeds Kasper in a wheelchair with a spoon. Along with the meal, Kasper receives several different drugs.
Despite his difficulties, Kasper is an active child, often even at night. My cup will find a dish in the dishwasher and a cap on the head without anyone’s help.
However, Kasper does not do independently. The child requires constant control.
Challenges have also come from outside. Jenni says that when Kasper was smaller, she received negative feedback from society about her son.
– Kasper’s right to life was considered. It was a place for myself. However, it is about your own child. How can life be valued based on what kind of diagnoses or how disabled are? Jenni asks.
In Jenn’s opinion, disability does not have to be kept hidden. It can be seen, as well as all the good it has brought.
Alive 24h today on TV1 at 8pm & Arena. See all TV shows and broadcast times on the Telku TV guide.