SRare blood cancers require greater awareness. This is precisely the objective of World Myeloproliferative Diseases Day which occurs on September 14th. If it is true that scientific research has made it possible to improve and prolong patients’ livesnow we also have to act on the side of the patients to help them manage the disease actively and consciously.
Rare blood cancers: what patients experience
What do people who live with chronic blood cancer look at, remember and feel? The eyes they focus on the doctor’s face and gestures 56% more than the average, while it remains etched in the memory for a long time availability of the hematologist to clarify even the most difficult concepts. Instead, what generates intense emotional peaks, detected by the heartbeat and skin sweating, is the family members’ ability to distract the patient with a fixed thought about the disease. This was revealed by a study conducted by the Behavior and Brain Lab research center of theIULM University of Milan.
A handbook for doctors and caregivers
Brain activation, heartbeat, eye movement And sweating cutaneous: for the first time the neurometric techniques to find out what they feel, remember and look at over 40,000 Italians with chronic blood cancer during common interactions with their doctor and caregivers. Thus the guide was born “Life Connections” promoted by Novartisin collaboration with AIPAMMas part of the information and awareness campaign MIELO-Explain. They emerged from it 10 tips to build positive relationships between patients, doctors, family and friends collected in one social utility handbook.
What patients don’t say
The small gestures, words and interactions that patients establish with doctors and their loved ones have an impact direct impact on their mental well-being and I’m like that capable of making a difference in the course of the disease of a chronic blood tumor. “And the first application of neurometric techniques in the field of chronic blood tumors. We were able to observe the activation of different areas of the brain during municipalities interactions with doctors and caregiversmeasure your heart rate and hand sweating to understand emotional intensityexamine eye movement for understanding what they pay most attention to. This allowed us to go beyond what patients sayfind out what they feel, remember and look at”, explains the Professor Vincenzo RussoProfessor of Consumer Psychology and Neuromarketing, IULM University and coordinator of Research Center “Behavior and Brain Lab.
Rare blood cancers: relationships with doctors and loved ones
«For us clinicians it is important to support the patient not only from a scientific point of view, but also through attitudes and words that can help others to feel calmer and safer. The results of this neurometric analysis show us, for example, how to use simple language and welcome all their doubts to improve the emotional involvement of our clients”, states the Doctor Elisabetta Abruzzese, Hematology S. Eugenio Hospital, ASL Roma2. On the emotional front, 1 in 2 patients complains of overprotective behavior of loved ones, 3 out of 4 say they appreciate it when family and friends involve them in daily activities. An attitude of reciprocity that determines positive emotional peaks. Because patients’ mental well-being improves when those close to them try and succeed in distracting them.
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