Disability, stories of girls without limits

Qhis story begins with an uncle and a nephew. The first is a bespectacled journalist who loves to write stories. The second is a child with a disability (achondroplasia, a common cause of dwarfism) who loves cars and hates broccoli. Almost three years ago, when he was born, his uncle wondered what his role models could be, growing up. The question has turned into a book for children and teenagers came out for DeAgostini. It’s called Without limits and collects 15 biographies of people with disabilities. The book tells James Fasola (the uncle) was born to inspire many children and young people with disabilities like Simone (the nephew) and help them imagine their place in the world. But it can also help their classmates understand that the difference shouldn’t be scary.
In the book there are the very famous: Alex Zanardi, Beethoven and Stephen Hawking. But there are also stories of less famous, but no less great people, such as that of Paul Steven Miller. And 5 stories of girls with disabilities: Ambra Sabatini, Vitoria Bueno, Frida Bollani, Madeline Stuart and Isabella Springmuhl Tejada.

Not disabled but people with disabilities

“Some words that we normally use, such as able-bodied or disabled, are wrong, and I understood it only by writing this children’s book,” says Fasola. It is not a question of language but of how we look at disability, when we see it. «In our society, disability tends to precede the person: that is a disabled person, an amputee, a Down. And instead “that” is one person who has a disability such as is also blond or has glasses».

A chronicle also derives from this lack of figures to inspire children and young people with disabilities. «I’m thinking of Simone: it’s not possible that her only role model is a dwarf actor who plays dwarf roles», like Peter Dinklage, so to speak. So Uncle Giacomo tried to offer him at least one other model, dedicating a chapter of the book to him: è the lawyer Paul Steven Miller. Who has been, among other things, special assistant to Barack Obama since 2009 and, for ten years, head of the American Commission for Equal Employment Opportunities.

Girls beyond disability: Vittoria Bueno

“It doesn’t mean that every child with a disability should set extraordinary goals for himself”, explains Fasola, “Only that he can do it, that disability is not an obstacle”. On the contrary. What it looks like a weakness can become a strength.

The story of the stuttering singer proves it John Paul Larkinwho found in music a way to express himself not using words, and invented a musical genre, between scat and jazz.

Or the story of Armless dancer Vittoria Bueno. Born in the extreme south of Minas Gerais, Brazil, she has learned since she was born to do anything with her feet. And so she even felt an advantage in her artistic career: dance requires strong, resistant and elastic feet. And who more than her?

Amber Sabatini

Again, «disability does not lead to failure but can lead, in lifeto a change of perspective. As in the case of Amber Sabatini, young promise of the middle distance who, after the loss of a leg, has reinvented itself. As an amputee she couldn’t run the middle distance? You have decided to switch to speed (ie the only Paralympic specialty for the “athletes with prosthetic limbs” category).

He did the same, in a sense Ludwig van Beethoven: «Completely deaf, he couldn’t be the great concert artist his father dreamed of. He was the greatest composer of all time ».

But that of change of perspective on life it is a path that not only young people with disabilities can take but their parents too. Mothers and fathers who, like all mothers and fathers, dream of the best for their children. It could be, then, that there is a different “better” to dream about.

Frida Bollani

Another of the female stories that Giacomo Fasola tells in his book is that of Frida Fiore Dulcinea Bollani Magoni, daughter of pianist Stefano Bollani and singer Petra Magoni. She has been visually impaired since birth but she has a «superpower», as Fasola calls it for her young readers. That is absolute pitch, the ability to recognize exactly the frequency of a note without a tuning fork or other references of any kind. Frida started playing the piano when she was two years old and at 7 she, after an essay, she went so far as to tell her mother about her «If I hadn’t had the gift of blindness I could not have interpreted the music so well». His debut album is titled First tour and has a cover written in Braille.

Madeline Stuart and Isabella Springmuhl Tejada

The last two stories of girls beyond disability are those of Maddy, from Australia, and Belita, from Guatemala. They don’t know each other but are almost perfect the same age (born in ’96 and ’97). And they both have a great one passion for fashion which they managed to turn into work. The other common point? Down syndrome. Madeline Stuart she was the first model with Down syndrome: since 2015, when she walked the catwalk at New York Fashion Week. Isabella Springmuhl Tejada instead she is one of the most popular designers in all of Central America. Her brand is called Down to Xijabelle, named after her grandmother’s boutique.

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