World of Jamilla Deput is when daughter Charlie (4) turns out to be incurably ill: ‘Looking ahead is difficult’

Everything seems to go well for Jamilla Kool (34) and her partner. Two healthy children, a nice family, a beautiful house. But in January this year everything changes when their youngest daughter Charlie (4) turns out to have a metabolic disease. Since then their lives are completely upside down. “In a world with so much medical knowledge, there is nothing for her illness.”

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