“When all those doctors came together at UZ Gent, it was clear: this is serious.” Tina Verscheure (35) and Kevin Callens (37) take care of their eleven -year -old son Cayétano, who lives with the rare and incurable syndrome of Lowe. A diagnosis was not for three years. A rollercoaster of emotions for the family that, despite everything, is so positive and happy in life. They even started a weekly podcast, for the benefit of the Warmest Week, to share their story. “His life expectancy is between 30 and 40 years old, but it can also suddenly go fast.”
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Tina and Kevin start podcast about son Cayétano (11), with Lowe’s syndrome: “We don’t know when his kidneys will go” “
Bytaketonews
Sep 27, 2025