Dion is in group 8 of primary school De Meertuin in Slootdorp. Next year he will go to VWO at RSG Wiringherlant in Wieringerwerf. He has just been told that it can continue, despite his sudden limitation,. A suit of his heart. School is important to him, but his action now gets all the attention. He wants to raise a lot of money for research into the disease.
“Reading and writing is no longer possible. And you don’t play games anymore. That’s worthless. I’m going to play outside more often. Walking through the village with a friend. Or to the football field. And my friends help me, although one can understand better than the other. In the beginning I was angry about what happens to me, but not anymore.”
Leber is rare eye disease
Leber is a rare eye disease in which cells in the optic nerve no longer work properly. The nerve dies due to an error in the DNA so that you can become visually impaired. Leber is very rare: ten to fifteen people in the Netherlands are diagnosed every year.
More than 400,000 euros is needed for research into the disease. Dion: “After genetic research, I know that this disease can occur from my mother’s side with our family and the family. My children can’t get it because boys can’t transfer it.”
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