Many Belgians walk around with this condition and often do not know why they are struggling so much with their health: “Even as a general practitioner, I did not recognize my own disease”

Today is ‘Rare Disease Day’. Attention is then drawn to people with rare conditions. Marilyne Deconinck (65) and Jacques Quaghebeur (74) can talk about it. Their vague complaints remained a medical mystery for a long time, until that one rare disease was diagnosed: amyloidosis. “I eventually started to doubt myself: am I imagining it?” says Jacques, who is a retired general practitioner.

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