The Hemophilia Foundation It is a national organization that offers medical and interdisciplinary assistance, accompaniment and education to people with hemophilia throughout the country. At present, this interdisciplinary institution, more than 80 years of life, has the largest number of registered patients in Argentina, reaching more than three thousand. In addition, it provides advice to all reference centers, more than thirty, which are distributed throughout different parts of the Argentine territory.
He Ministry of Health of the Nation I make the decision to cut the financing abruptly to the Foundation. For the organization, this state contribution is indispensable to maintain the operation and structure of interdisciplinary care for the treatment of hemophilia. In its own building on Soler 3483 Street in CABA, there are ten health services with its specialized professionals, six volunteer patients committees, general administration and services personnel and a Board of Directors formed of people with hemophilia and family members.
“This form of organization guarantees not only interdisciplinary attention, but the education and respect for the voice of the organized patient. It is an international training and lighthouse center for the entire region,” he said María Belén Robert, President of the Hemophilia Foundation, and clarified: “We are already working on various lines to try to overcome the situation. What happened is that before the delay of compliance with them, debts were generated that make this transformation very difficult to begin. The donation can be done to the next aka: ARE. FOUNDATION. FH from the Bank of the Argentine Nation or contact [email protected]
In dialogue with News, Robert recalls that in 2001, before the economic and social crisis of the Government of the Rúa, patients were chained to the building as a visibility action in the face of the impossibility of preserving care provided until that moment. This protest obtained as a result the specific help of the national State, through the Ministry of Health, materialized in an annual contribution.
“This contribution was thoroughly requested and requested throughout the more than 20 years. Action that this patient organization performs in a totally transparent and efficient way. With this contribution, the actions of assistance, education, maintenance and treatment are financed. Through humanitarian aid of the World Hemophilia Federation, Receive medication for patients without social work coverage and in case of emergency, in this way with the responsibility of the State to address these cases, ”explained the head of the Foundation.
Given the question of what evaluation he does of the Argentine health system before this type of episodes, adding the crisis in various public hospitals, Robert replied: “Given this situation that we have condition, we develop knowledge that should be considered and that optimize resources. da, they are days of life that are denied. ”
By rn
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