“When cuddling, she always holds us very tightly”: Lynora is only 21 months old and has already had 15 procedures

“It was a normal pregnancy and the first year was wonderful. But without anyone seeing it, Lynora’s heart kept getting bigger and bigger.” What started with paleness and fever turned out to be a rare abnormality. Fifteen interventions later, the family of Laetitia and Baggio from Stabroek are fighting for some normality, without tubes, catheters or medications. “We would love to get to know our daughter better,” they testify to HLN.

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