THEThe Nek singer is exposed for the introduction of neonatal screening for metacromatic leukod -scene, a rare disease, curable only before the manifestation of symptoms and launches an appeal. That’s why neonatal diagnosis is important.
Nek at the forefront of metacromatic leukodystrophy
«Gioia is a 2 and a half year old girl suffering from metacromatic leukodystrophy, a rare neuro degenerative disease that compromises normal development and above all life. His story touched me deeply, but unfortunately it is not an isolated case, “says the singer.
«I have been working for some time with the Voa Voa association to give voice to families with children with this pathology, responsible for unsustainable situations for those who love them. It is essential that the institutions intervene and it is time to also be introduced in Emilia-Romagna neonatal screening. Only with everyone’s commitment is it possible to guarantee a better future ».
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